Table 3 Preferences for child health information
Theme | Parent/Elder | Quotes | Category |
|---|---|---|---|
Finding trustworthy information | Mother,007 | “I just don’t have the time or the patience to search through the internet and read up on stuff… they [health professionals] say Google it. Well, no, I’m coming to you because I want your opinion on it.” | Communicating with healthcare professionals |
Mother,003 | “Something written by professionals, like, a pediatrician or not just a pediatrician but like specialists…. where you can connect to them because they’re from Canada… they practice the same medicine where you live because around the world obviously, they practice it differently and they have different techniques for different things.” | Communicating with healthcare professionals | |
“it gets confusing where one person will say one thing and another. It seems in general it’s just very difficult to find what answer is right, what one is wrong” | |||
Elder, 017 | “A lot of people are not computer savvy or they don’t know anybody that might be able to help them. So, they’re in the dark, who do they go to? So, if they’re really sick, they go to emerg. Or urgent care.“ | Communicating with healthcare professionals | |
Mother,006 | “I would want it to be curated and monitored by people who have medical training or at least knowledge… I don’t want Wikipedia where everybody can go and edit it…Or at least an actual registered organization that it is, is not spewing rhetoric or false studies.” | Communicating with healthcare professionals | |
“…I think if you have a person that you can communicate with that you can form a trusting connection with, even if they’re just helping you navigate and talk to this person and talk to that person…I think culturally speaking is, is very important, especially in the climate we’re in right now. Right. We want reconciliation. We have to acknowledge that there’s a problem in our healthcare system. And it’s a lack of understanding and respect that creates and promotes fear along with the past” | |||
Mother,004 | “hearing doctors who, like all these high words of vocabulary ask you of things you have no idea what they’re saying or anything. So, it’s no comfort. Knowing they’re trying to explain to you but you don’t even understand what they’re saying. So, a lot of times I would reach out to social media for this feedback.” | Communicating with healthcare professionals | |
Mother,007 | “our professionals are busy and they’ve got to see their patients and get through the day, but, the one’s that take the time to listen, that makes you feel really important and that what’s going on with you matters.” | Communicating with healthcare professionals | |
Information needs to be widely available | Mother,006 | “…most people have smartphones, but there is something said about holding something in your hand. About physically being handed something that has words on it or a number or a website that oh, this can help…It’s comforting to touch it.” | Digital formats |
Mother, 009 | “I like how when you go onto social media, it’s there right when you need it.” | Digital formats | |
Mother,018 | “Facebook for parents, because I like to have that interaction with an actual parent…then you don’t feel so alone…There’s a lot of people like me that have kids that deal with things like that…it’s the connection.” | Digital formats | |
Mother,009 | “I really like videos. I’m just more of a visual learner that way.” | Digital formats | |
Mother, 004 | “when my son was heavy breathing, I didn’t understand what was going on so going on social media and just looking it over or even just making a post on Facebook and asking has anyone experienced this and then you get feedback immediately”. | Digital formats | |
Mother,003 | “… a video would be fast, so they could be like, okay, the kid is sick, this is what we should do instead of panicking and running to an urgent care or an emergency.” | Digital formats | |
Mother, 011 | “… videos are helpful and kind of easy snippets to watch. I like reading stuff and holding it actually and referring back to it too though.” | Paper formats |