Table 1 Priority-setting survey results
From: Mapping a research-advocacy-policy agenda on human rights and albinism: a mixed methods project
Order of Priority | Top Two High Scores | Scores | Bottom Two Low Scores | Scores |
|---|---|---|---|---|
Advocacy strategies | ||||
 Cluster #1: Local Advocacy Strategies | Improve skin care | 97.4 15a | Use literature 26 | 43.6 |
Access to education | 94.9 11 | Use theatre (plays) 24 | 42.1 | |
 Cluster #2: International advocacy Strategies | Strategies originating from international NGOs 1 | 94.8 | Financial assistance from international community 4 | 82.1 |
Cooperation to prevent cross-border crimes 6 | 92.3 | Lobby for openness to PWA seeking asylum 5 | 53.9 | |
 Cluster #3: Avenues of Influence | Primary teachers in schools 42 | 89.5 | Seek alliances with supportive politicians 34 | 74.4 |
Make central albinism support groups 36 | 87.2 | Witchdoctors and traditional healers 37 | 66.7 | |
 Cluster #4: Intersectoral Advocacy Strategiesb | Strategic alliances among NGOs 8 | 94.9 | Alleviate poverty 9 | 64.1 |
Promote Albinism Awareness Day 10 | 69.2 | Â | Â | |
Policy initiatives | ||||
 Cluster #1: Health and Social Policy | Free eye and skin care 46 | 92.3 | Poverty reduction 52 | 74.4 |
Integrated classrooms 50 | 92.3 | Policy specific to older PWA 53 | 53.8 | |
 Cluster #2: Policing | Strengthen local policing 73 | 89.2 | Sting operations to intercept trafficking 74 | 76.3 |
Special prosecution task force 72 | 78.9 | Pursue justice in internation courts 71 | 46.5 | |
 Cluster #3: Legislation and Regulation | Child protection policies 65 | 84.6 | Ban TV and radio programs that stereotype 69 | 59.0 |
Regulation of witchcraft practitioners 67 | 82.1 | Regulate Nollywood 70 | 56.4 | |
 Cluster #4: Professional Groups | Create National Office for Albinism 54 | 87.2 | Create Local Officer for Albinism 55 | 59.0 |
Increase number of teaching assistants 57 | 76.9 | Increase number of vision specialist teachers 58 | 56.4 | |
Research priorities | ||||
 Cluster #1: Stigma, myths, beliefs | How to end discrimination 81 | 88.9 | Experience of older PWA 79 | 50.0 |
Ways to dismantle public health myths 82 | 86.1 | Death myth 80 | 44.4 | |
 Cluster #2: Research about Advocacy | Effectiveness of albinism advocacy strategies 149 | 88.6 | Social dynamics with and within the disability movement 154 | 62.9 |
How to integrate voices of PWA 153 | 85.3 | Human rights - comparing albinism with other disabilities 151 | 57.1 | |
 Cluster #3: Witchcraft | Best ways to engage witchdoctors 134 | 85.3 | How economies of religion relate to killings 128 | 60.0 |
Impact of witchcraft on PWA 124 | 80.0 | Human sacrifice of PWA 123 | 58.8 | |
 Cluster #4: Psychological Wellbeing | Resilience 85 | 83.3 | Impact of trauma 86 | 75.0 |
Social change in Africa 88 | 75.0 | Trauma-informed care and policy 87 | 75.0 | |
 Cluster #5: Economic and Social Rights | Educating employers 116 | 83.3 | Variability of service 111 | 52.8 |
Accommodations in the workplace 115 | 72.2 | Effect of agrarian to global market economies 109 | 40.0 | |
 Cluster #6: Health and Social Care | Improve providers’ knowledge & practices 98 | 82.9 | Genetic testing 91 | 44.4 |
Local specialist low-vision care 94 | 72.2 | Cultural views of wearing glasses 95 | 33.3 | |
 Cluster #7: Family | How to support families 106 | 83.3 | Families’ knowledge of genetics 104 | 58.3 |
Lives of children with albinism 103 | 67.6 | Families and safety | 58.3 | |
going to school 105 | Â | |||
 Cluster #8: Law | Human trafficking139 | 74.3 | Applicability of international criminal law 137 | 60.0 |
Effectiveness of safehouses 142 | 74.3 | Legislation needed to grant asylum 140 | 45.7 | |
 Cluster #9: Religion and Church | How to engage faith leaders 120 | 69.4 | African ontologies 118 | 69.4 |
Role of faith communities 119 | 63.9 | Everyday religion in Africa 117 | 54.3 | |
 Cluster #10: Media and Communicationb | Impact of media on stereotypes 146 | 65.7 | Media bias in Europe and U.S. 145 | 45.7 |
Role of Nollywood films 147 | 45.7 | Â | Â | |